Skip to main content

Mum, I can do anything.

 729932953e2d7a28ddb3251916a348e3

 

 

 

" Will he ever be able to read properly?"

" I don't know."

"You know, like a Harry Potter book or something?"

"I'm really not sure. We didn't even think he would be able to speak to us a few years ago, but I think he may have trouble with big stories, maybe even filling out and understanding forms when he's older. I just don't know..."

This is part of a conversation that I had recently with Ethan's Dad. Those questions that I do not have the answers for. As a mum, I am wracking my brain to work out ways that I can help Ethan with giving him the best tools and skills so that he can get through this thing we call life. 

Society is brutal. And I can only imagine how even more brutal and perhaps frightening it could be for a young person with an Intellectual Disability trying to navigate their way through the maze. 

I just want to protect him for the rest of my days. As Mothers do. 

I've reached out to a few people who know way more about books, reading etc than I do - I hope I can get some answers that may give me a platform to start on. Being able to understand the world is tough enough. I never want Ethan to be taken advantage of. 

So, as a blended family { yes, we are all civil and talk about Ethan together }, the only thing i knew was that we have to be on the same page. Words, sentences and big stories confuse him, make him stressed. He hates it. I can totally relate to hating something and being made to do it. So I thought about how to "pitch" the idea of introducing some time to work on words - through his obsession. 

One of Ethan's obsessions is electronics. You name it, tablets, bluetooth headphones, iPods, blue tooth keyboards, playstation games. The kid is an absolute wiz at all these things. From turning on a game for the first time, within an hour, he is an expert. It's like Leggo. Put a huge box of Leggo infront of him with the instructions, and the whole city is made and completed before i can even finish making dinner. Ethan has such focus on the things that he loves the most. And through his electronics, it gives him the opportunity to not be part of the "world" that can be scary for him at times. It is his safe zone. 

I get it. 

So I used it to my advantage. 

His Dad, Steve and I talked to Ethan about allocating some time every day to work on words. Work on reading. We explained as a "united front" as to why it is important and we understood that it is frustrating but putting some hard yards in now will greatly help him getting a job later on. He eyes were darting around, not focusing and trying to listen to the sound of Dora the Explorer that was playing in the background. 

" 15 minutes a day, buddy" I said, sort of snapping him back to the three of us with him. 

"Yes, yes - okay." "Do I have to every day?" "Yes matey, for now, lets try for every day"

And then it clicked for me.

"Hey E. I saw this AWESOME video today about a guy that had trouble at school and he got into computers. It's on YouTube {his favourite thing in the whole entire world}. It goes for about 25 minutes. Would you like to watch it and then have a talk to me about it after?"

"Ok"

 

25 minutes later.......

 

 

"Mum."

"Yeah mate."

 

"I can do anything can't I?"

"You most certainly can hunny."

 

I urge you to watch the below video that Ethan watched. If you have kids, get them to watch it. It is beautiful with such a powerful message.

 

 

Comments

Popular posts from this blog

Do not write blog post when you have had a couple of wines

 It's been a bad day.  Not a travesty, but a day of anxiety, overload of emotions, countless puffs from many a ciggies and all in all just a bleh.  Where the fuck has 2020 gone? How did we get from free world to lockdown and oppressions and wearing masks???? I  burnt my 2020 planner, close with my 2020 diary, because why the fuck, hey? Let's just write this year off as a mistake on a humanity scale and start fresh in 2021.  Funnily enough, I bought a $4 2021 diary. So there may be hope. My beloved is struggling. Which  means that I am struggling, Seeing him in pain, no sleep, swelling joint agony, depression and all the things that entail chronic illness. I'm at a loss as to how to help him, I just sit and be with him and tell him every day that i will be by his side till the rest of my days.  At least 2020 has shown us this: What actually is important in our life, What actually matters, like really really matters,  The latest model car o...

Is it Saturday or Sunday?

 It is just before 6am as I sit here on my back porch watching the sun slowly rise for another day. What day is it? #isolyf has got me all confused to the day, date and month. With so many of us wishing and wanting “more time”, I have found myself getting bored of being bored and the motivation bug seems to come in slower and less frequently. How the world has changed in the unprecedented times, hey? It seems that here in #straya, we have quickly adapted to the powers that be and in the matter of weeks have become accustomed to the lack of interaction and movement. Does that concern you? How quickly we have been able to conform? I had to delete Facebook off my phone a few weeks ago as I was constantly checking #scomo and Googling “coronavirus” every other minute. The information overload brought on confusion as well as fear and I was working around feeling like doomsday was coming. The best thing that I did was switch off. The establishment news was only regurgitating stupidity ...

Tyranny, Censorship, Fear and Questions

 This post will most likely be banned on any social media accounts I share to. Censorship has been coming in hard and clear – even more so in the past few months. While I have been indulging myself in all seasons of Gossip Girl, Tiger King and Real Housewives of Anywhere, I have also been digging deep with the help of some like minded souls into Science Censorship, Liberty stealing and heart wrenching conformance that has been occurring around the globe. In many ways, 2020 for my little family has been positive. Deleting the last few days of a polar blast over the southern states of Australia bringing Winter overnight with freezing, blizzard winds and rain that was howling sideways over the rooftops. Other than that, we have had some wins here. When #Covid19 came to light – I had my fingers peeled on Google repeat. I was watching every single news article I could find, hitting refresh on all the latest updates on Facebook, the big five News establishments as well as TV. It was ...